Sundowning has hit. The darker evenings has meant that once twilight arrives, Sundown affects Mom so that she is unsure of whether it is morning or evening. Sundowning is such a strange condition. Mom will not go to bed, even at 1 am because she thinks it is early evening. At the moment we are running at every other night in bed. I was expecting this; we experience a similar situation in Spring when the clocks change and the lighter evenings take over. We go with the flow, I ensure Dad is in bed as he has to lie down at night due to his heart condition and associated issues. I can cuddle up on the sofa and keep an eye on things with Mom keeping the door open so I can check on Dad.
Yesterday Dad’s right knee became more painful than usual and started to swell. We thought this was arthritis inflammation as a similar thing happened in June on the left knee; it took one day to flare up and almost nine weeks to resolve. Thankfully the stairlift is in now which it wasn’t in June when I had to flex my muscles to help him on the stairs. The doctor prescribed some strong anti-inflammatory gel yesterday and although the joint is still extremely painful and he still can’t put weight on the leg, the swelling has not increased so far. Again I am flexing my muscles to help him in and out of his chair.
Yesterday morning I had a hospital appointment for an ultrasound, abdominal and internal. I was supposed to come home and rest but I couldn’t do that. I was on high anxiety the hour I was at my appointment even though our lovely carer was covering for me. When I returned to find Dad totally immobile I had to take over the jobs he usually does. I just left a lot of chores and concentrated on the needs of Mom and Dad, you just have to go with the flow. It was difficult as I was in a lot of pain myself, but you have to just keep going, there is just me.
Trying to cope with both of them at the same time was so hard, negotiating Mom’s changing mood, helping Dad in and out of his chair, bathroom visits for both of them, cooking, medication, helping Dad to bed and then an all nighter with Mom.
It made me think a lot about self care, about how important it is for me to stay healthy in order to look after them. It also made me think about contingency plans should I fall ill and also about making a will just in case. I need to be as sure as I can be that they will be looked after properly, with love and attention should I not be here.
Being a full time carer gives you a lot of food for thought, worries and anxieties. It is also very rewarding and I’m loving this time spent with my parents as challenging as it is at times.
I’m behind on reading your wonderful blog posts, I promise to catch up soon and as usual I have loads more I want to write about, I never know when to stop!
© @aurorasparkles 2017
Hello, You certainly have your hands full, there is no doubt. However, you do need to take your own advice and give yourself the moment to self-care. I give you a great deal of respect for all that you are enduring. You are obviously a strong woman, but again… You do need to take care of yourself. Lord forbid something happens to you, do you have a backup plan?
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Thank you so much for your lovely kind words. I’m in the process of sorting out a back up plan, there is a lot to cover when you start to really look into things and it’s quite emotional too; trying to plan for any eventuality. Thank you too for re-blogging, you are truly kind and caring x
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I can imagine the emotional side affects all too well. One step at a time, and don’t forget to breathe. 🙂
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Reblogged this on Beckie's Mental Mess and commented:
“Sparkling Dawn” shares a very rough time in her life caring for both her parent’s needs. In the midst of her doing so, she even realizes that she needs “self-care” in order to continue to care for both her parents. This is a heartwarming post of unconditional love for her family.
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Thank you so much for sharing x
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My pleasure. 🙂 I appreciate not only good writing, but a true heart.
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Thank you 😊
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Hi Dawn,
It sounds as if you are having health issues that you need to tend to. Please don’t forget to do that, I’m sure mom and dad would never do anything to harm you and not taking care of your health can be harmful.
My dad suffered from the time changes too – I’ve read that bright lights help, even if they are on during the day to emphasis the daylight. Also, vitamin D – if mom is able to, take her outside, even if it’s just for a little while.
Stay tough, stay strong and take care of Dawn too!
hugs!
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Hi Joan, thank you so much for your kind thoughts. I’m sure I’m fine, the ultrasound was clear so blood tests next, just to check things out. It could well be stress/anxiety causing my issues, stress does weird things to our bodies!
I’m doing my best to get some “me time” and do the things I love which stress bust and relax me.
Mom takes a Vitamin D supplement which does help. The Sundowning will settle again; usually it is once every three weeks but when the clocks change we have an unsettled period. I’m tired at the moment, we’re currently entering week four of going to bed every other night 😴 I invested in an inflatable mattress that I can use when we stay up all night so I do get some sleep.
Life takes us on unexpected journeys. Hugs back x
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I agree. I took care of my Grandmother two days a week. I never complain. She took care of me for 18 years. I believe love rewards love.
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You’re right. It is a total labour of love and I wouldn’t have it any other way. I feel blessed to be given this opportunity to care for my parents. You were fabulous to look after your Grandmother.
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Took three of us. Each day. One family member took care of.
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Only when you are healthy can you provide the care necessary to your parents. Oh this is so tough on you, I can only imagine, being a caregiver for both parents simultaneously. Thinking of you and admiring your strength! ❤
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Thank you Christy, it’s a balancing act that’s for sure. There are times it can be extremely stressful and I get anxious but I try to hide it from them. I need to stay calm so that they stay calm as possible and then we can handle a situation. I think if I thought too deeply about what I do, I’d be scared stiff. Best to just get on with it and give them happy, healthy times. Thank you so your support, it means a lot ❤️
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