Sundowning, Sleep and Me.

November 27, 2017 Dawn - The Sparkle Diaries.Leave a comment

Sundowning was something I had never heard of until about two years ago. Out of the blue Mom would get confused, agitated, nervous and not know if it was morning or evening. If we did get to bed there may be “room roaming”, Mom would be on patrol within her room, back and forth to the window wondering why it was dark during the day. Some nights we wouldn’t make it up to bed at all. Other nights we’d get to bed and sleep only to find ourselves back downstairs a few hours later. This is what has happened tonight. Last night Mom and I didn’t get to bed at all.

Since the Doctor said Mom’s topsy turvy nights were due to Sundowning I’ve read quite a lot about it. We don’t fit any of the profiles given (typical) however some of the remedies do work for us. Keeping to routines, staying calm and reassuring, making hot sweet tea and favourite biscuits as sometimes Sundowning can come on due to low blood sugar.

It is always worse when the clocks change. When our clocks recently changed due to the end of British Summer Time I was expecting a couple of weeks sleep disruption. We had four weeks where we went to bed every other night. We then had a run of six nights in a row of uninterrupted sleep which believe me was heaven. For the past two weeks we’ve had one Sundown night each week until this week; last night and tonight. Mom was expecting visitors. I tried to explain it was 2:30 am but Mom thought it was afternoon and of course in the depth of Winter we can have some very dark days where night time starts to descend mid to late afternoon; a typical Sundowning trait of switching night to day.

My night out last Sunday did not help things. Routine was upset, I was out and came home late, 1:15 am. Mom was happily enjoying her time with the Carer and Dad. I got into bed at 3 am and Mom got up at 6 am…last Monday was a very long tired out day.

A slight twist to the Sundown is that some nights Mom just doesn’t want to go to bed even though she is tired. This isn’t Sundowning. I’ve researched this too! It seems that elderly people can get so comfortable, cosy, warm and relaxed in their chair they don’t see the point in moving to bed, so they don’t, they sleep quite comfortably where they are. This is fine for them but hard on their carer who doesn’t get a proper night of sleep. There is no change of mood when this happens, no anxiety or confusion. My fairy of a Mom just wants to stay put where she is.

My main issue with being up at night on a regular basis is not only am I lacking in vital sleep but I need to keep going during the day to take care of Dad when he gets up and to do the cooking etc. I did very little yesterday and I’m thinking today is going to be written off chores wise. That’s how it goes, we just have to go with the flow. Keeping Mom happy, relaxed and safe is our priority.

We have had our 3 am tea and biscuits, Mom has fallen asleep in her chair, Dad is asleep upstairs and I’ll attempt a few hours sleep now. The wind and rain are pelting against the window, it’s comforting, soothing and I hope will help me drift off to sleep.

Pictures via Pinterest

©️ @aurorasparkles 2017

The Music Sparkle.

Dancing Feet and Cowboy Boots.

November 21, 2017 Dawn - The Sparkle Diaries.12 Comments

It’s a while since I managed to post a catch up blog, it’s on my to do list. However, last night I managed to get out to see my favourite Irish music star, John McNicholl and I just had to post a few pictures tonight.

John doesn’t visit Birmingham too often and as I am unable to travel to see him in other parts of the UK or Ireland, I have to wait for him to play my city and hope I can get out to the dance. It takes some strategic planning these days to do so, especially as it entails a late night but things worked in my favour last night and Cinderella did go to the ball. Cinderella also checked her phone every five minutes but that’s how it goes these days. I was so glad I was there. John has a fabulously rich voice and sings not only Irish and Irish Country music but also some Rock and Roll, Sixties and last night we had some Neil Diamond too. John has boundless energy on stage, a real entertainer. He has a great band of musicians with him, the music is wonderful. I was up on that dance floor almost all night, I made the most of the freedom I was enjoying, I felt like me again, if that makes sense? My knees are paying the price today though…

There are a lovely bunch of people I meet at John’s gigs and I’ve made some wonderful friends over the past four years. I was really feeling the love last night from them all. They had missed me posting on Facebook (I had no idea I hadn’t posted there since August), they were concerned about me, was I ok? Was I getting out? I’m still feeling emotional from the genuine concern and caring about me from these friends. I feel so loved by them and that feels so warm and comforting.

John himself is a true gentleman and I am so happy to count him as a friend also. Rumour has it that he is back in Birmingham in January so fingers crossed I’ll be pulling on the cowboy boots and heading for the dance floor again then.

So, a few photos from last night, I was so happy, I made them all have their photo taken with me.

John McNicholl

Shane who plays Guitar in John’s band.

Johnny who plays the drums in the band.

My friend April and myself.

I’m wearing the dress I bought for my Graduation which I ended up deferring until next year. However, I’m so happy with how I look for a change, that 22 lbs weight loss makes such a difference. No wonder I was a diva on the dance floor, I had the energy to do so!!

Life Sparkles

Caring – it’s tough!

November 8, 2017 Dawn - The Sparkle Diaries.16 Comments

Sundowning has hit. The darker evenings has meant that once twilight arrives, Sundown affects Mom so that she is unsure of whether it is morning or evening. Sundowning is such a strange condition. Mom will not go to bed, even at 1 am because she thinks it is early evening. At the moment we are running at every other night in bed. I was expecting this; we experience a similar situation in Spring when the clocks change and the lighter evenings take over. We go with the flow, I ensure Dad is in bed as he has to lie down at night due to his heart condition and associated issues. I can cuddle up on the sofa and keep an eye on things with Mom keeping the door open so I can check on Dad.

Yesterday Dad’s right knee became more painful than usual and started to swell. We thought this was arthritis inflammation as a similar thing happened in June on the left knee; it took one day to flare up and almost nine weeks to resolve. Thankfully the stairlift is in now which it wasn’t in June when I had to flex my muscles to help him on the stairs. The doctor prescribed some strong anti-inflammatory gel yesterday and although the joint is still extremely painful and he still can’t put weight on the leg, the swelling has not increased so far. Again I am flexing my muscles to help him in and out of his chair.

Yesterday morning I had a hospital appointment for an ultrasound, abdominal and internal. I was supposed to come home and rest but I couldn’t do that. I was on high anxiety the hour I was at my appointment even though our lovely carer was covering for me. When I returned to find Dad totally immobile I had to take over the jobs he usually does. I just left a lot of chores and concentrated on the needs of Mom and Dad, you just have to go with the flow. It was difficult as I was in a lot of pain myself, but you have to just keep going, there is just me.

Trying to cope with both of them at the same time was so hard, negotiating Mom’s changing mood, helping Dad in and out of his chair, bathroom visits for both of them, cooking, medication, helping Dad to bed and then an all nighter with Mom.

It made me think a lot about self care, about how important it is for me to stay healthy in order to look after them. It also made me think about contingency plans should I fall ill and also about making a will just in case. I need to be as sure as I can be that they will be looked after properly, with love and attention should I not be here.

Being a full time carer gives you a lot of food for thought, worries and anxieties. It is also very rewarding and I’m loving this time spent with my parents as challenging as it is at times.

Picture via Pinterest

I’m behind on reading your wonderful blog posts, I promise to catch up soon and as usual I have loads more I want to write about, I never know when to stop!

Life Sparkles

Crisp, Cold and Beautiful.

November 2, 2017 Dawn - The Sparkle Diaries.6 Comments

I’m loving these few days of late Autumn, early Winter we’re having. Living in The Midlands of England we are quite sheltered from extremely bad weather. If we get it bad here it must be truly desperate in other areas of the country. The forecasters are saying heavy rain on the way but for the past few days it has been beautiful. Cold, dry, sunny and perfect for getting a quick walk and some fresh air. I feel so much better for making the effort to go outdoors, feel the sunshine or the wind on my face. After today I think the hat and gloves need to come out!!

This afternoon I took a chance and had a shorter around the block walk. I was taking a chance as it was a little later than usual for me to venture out. It was just starting to get dark, twilight, sundown…which is also what throws Mom into confusion about the time of day or night “Sundowning” is quite apt. We had an all nighter last night and Mom was still not on good terms with me (it happens), hence I took the chance to walk.

It was stunning outside, the twilight sunset and the rising of the moon. The touch of the evening mist on my face and the cold on my hands. A sense of freedom, re-newed energy and a feeling of wellbeing. I was gone for 25 minutes and I felt amazing when I returned. Ready to face the evening and by now, Mom was friends with me again.