Life Sparkles

And the latest from me is…

…We are still in the midst of illness here at home, it’s been a long six weeks.  Mom thankfully appears to be fully recovered from the chest infections.  Dad though, bless him, since he had the chest infections at the same time as Mom, also then had a viral infection. Swiftly followed by Thrush in the throat, more than likely caused by the heavy doses of antibiotics for the chest infections and now we have Strep Throat, so more antibiotics and a very heavy dosage.  Eight, 250 mg tablets a day for ten days to ensure the bacterial infection is cleared up.  This time I am ready with the probiotic yoghurt in the hope that we can prevent another attack of Thrush after this latest dose of antibiotics.  It is so hard to watch Dad suffering with the Strep Throat.  The Doctor showed me his throat when she examined him on Tuesday and all I can say is it looked gross.  No wonder he has so much pain, unable to swallow which of course is affecting food and drink intake.  I have no idea where Dad contracted this particular infection, either someone who has called to visit has been in contact with someone who has it or Dad’s immune system was very low after the continued infections.  I am praying Mom doesn’t catch this particular infection.

https://www.webmd.boots.com/cold-and-flu/cold-guide/strep-throat-bacterial-tonsillitis

We have experienced some amazing hot Summer like weather in the past week, our Bank Holiday Monday was apparently the hottest on record.  For me it meant washing everything in sight and getting it dried on the line outside in the fresh air.  I love that. Such simple pleasures.  Also, the flowers in the garden have really bloomed.  Mom and Dad loved spending time in the garden and buying new plants, I’m doing my best to keep everything alive!

 

I did manage to get out for a walk on one of the warm days, it felt so good to be out in Summer clothes, feel the sunshine on my legs and arms.  We have had such a long, cold and wet Winter here.

The daisies growing wild in the grass reminded me of school days and running barefoot in the playing fields.  I’m very lucky to live close to the city and yet also within a five minute stroll to the edge of the countryside, it does a soul good to see the fields, the flowers and trees, even on a wet day.  Now the weather is back to where it should be for Mid May – much cooler, quite windy and chilly today.

I know I have been a little quiet on the music side of things, but I have been managing to grab some time here and there and I will blog about where I am with my dreams very soon.

Snapchat has given me giggles when I have had a chance to try out some fun filters and I find a giggle always does me good.  This is one of me looking a little tired out…and Snapchat has given me a Hippie Flower in my hair and freckles…it did make me smile.

img_7465

I did get out to a couple of the concerts that I have held tickets for since October last year, again, that’s another blog post to come.

So for now, I’m off to do some more chores, this post has taken me all morning to complete.  Full time caring is demanding, it’s stressful, I live almost totally on the edge of anxiety and worry and you do the best you can even when you feel so helpless. When there really is nothing you can do but just be there.

I’m looking forward over the weekend to perhaps an hour or so to have a cuppa and sit back and read your latest blog posts which I love to escape into.

With love and Sparkles x

Life Sparkles

Sundowning, Sleep and Me.

Sundowning was something I had never heard of until about two years ago. Out of the blue Mom would get confused, agitated, nervous and not know if it was morning or evening. If we did get to bed there may be “room roaming”, Mom would be on patrol within her room, back and forth to the window wondering why it was dark during the day. Some nights we wouldn’t make it up to bed at all. Other nights we’d get to bed and sleep only to find ourselves back downstairs a few hours later. This is what has happened tonight. Last night Mom and I didn’t get to bed at all.

Since the Doctor said Mom’s topsy turvy nights were due to Sundowning I’ve read quite a lot about it. We don’t fit any of the profiles given (typical) however some of the remedies do work for us. Keeping to routines, staying calm and reassuring, making hot sweet tea and favourite biscuits as sometimes Sundowning can come on due to low blood sugar.

It is always worse when the clocks change. When our clocks recently changed due to the end of British Summer Time I was expecting a couple of weeks sleep disruption. We had four weeks where we went to bed every other night. We then had a run of six nights in a row of uninterrupted sleep which believe me was heaven. For the past two weeks we’ve had one Sundown night each week until this week; last night and tonight. Mom was expecting visitors. I tried to explain it was 2:30 am but Mom thought it was afternoon and of course in the depth of Winter we can have some very dark days where night time starts to descend mid to late afternoon; a typical Sundowning trait of switching night to day.

My night out last Sunday did not help things. Routine was upset, I was out and came home late, 1:15 am. Mom was happily enjoying her time with the Carer and Dad. I got into bed at 3 am and Mom got up at 6 am…last Monday was a very long tired out day.

A slight twist to the Sundown is that some nights Mom just doesn’t want to go to bed even though she is tired. This isn’t Sundowning. I’ve researched this too! It seems that elderly people can get so comfortable, cosy, warm and relaxed in their chair they don’t see the point in moving to bed, so they don’t, they sleep quite comfortably where they are. This is fine for them but hard on their carer who doesn’t get a proper night of sleep. There is no change of mood when this happens, no anxiety or confusion. My fairy of a Mom just wants to stay put where she is.

My main issue with being up at night on a regular basis is not only am I lacking in vital sleep but I need to keep going during the day to take care of Dad when he gets up and to do the cooking etc. I did very little yesterday and I’m thinking today is going to be written off chores wise. That’s how it goes, we just have to go with the flow. Keeping Mom happy, relaxed and safe is our priority.

We have had our 3 am tea and biscuits, Mom has fallen asleep in her chair, Dad is asleep upstairs and I’ll attempt a few hours sleep now. The wind and rain are pelting against the window, it’s comforting, soothing and I hope will help me drift off to sleep.

Pictures via Pinterest

©️ @aurorasparkles 2017

The Music Sparkle.

Dancing Feet and Cowboy Boots.

It’s a while since I managed to post a catch up blog, it’s on my to do list. However, last night I managed to get out to see my favourite Irish music star, John McNicholl and I just had to post a few pictures tonight.

John doesn’t visit Birmingham too often and as I am unable to travel to see him in other parts of the UK or Ireland, I have to wait for him to play my city and hope I can get out to the dance. It takes some strategic planning these days to do so, especially as it entails a late night but things worked in my favour last night and Cinderella did go to the ball. Cinderella also checked her phone every five minutes but that’s how it goes these days. I was so glad I was there. John has a fabulously rich voice and sings not only Irish and Irish Country music but also some Rock and Roll, Sixties and last night we had some Neil Diamond too. John has boundless energy on stage, a real entertainer. He has a great band of musicians with him, the music is wonderful. I was up on that dance floor almost all night, I made the most of the freedom I was enjoying, I felt like me again, if that makes sense? My knees are paying the price today though…

There are a lovely bunch of people I meet at John’s gigs and I’ve made some wonderful friends over the past four years. I was really feeling the love last night from them all. They had missed me posting on Facebook (I had no idea I hadn’t posted there since August), they were concerned about me, was I ok? Was I getting out? I’m still feeling emotional from the genuine concern and caring about me from these friends. I feel so loved by them and that feels so warm and comforting.

John himself is a true gentleman and I am so happy to count him as a friend also. Rumour has it that he is back in Birmingham in January so fingers crossed I’ll be pulling on the cowboy boots and heading for the dance floor again then.

So, a few photos from last night, I was so happy, I made them all have their photo taken with me.

John McNicholl

John McNicholl

John McNicholl

Shane who plays Guitar in John’s band.

Johnny who plays the drums in the band.

My friend April and myself.

I’m wearing the dress I bought for my Graduation which I ended up deferring until next year. However, I’m so happy with how I look for a change, that 22 lbs weight loss makes such a difference. No wonder I was a diva on the dance floor, I had the energy to do so!!

© @aurorasparkles 2017

Life Sparkles

Caring – it’s tough!

Sundowning has hit. The darker evenings has meant that once twilight arrives, Sundown affects Mom so that she is unsure of whether it is morning or evening. Sundowning is such a strange condition. Mom will not go to bed, even at 1 am because she thinks it is early evening. At the moment we are running at every other night in bed. I was expecting this; we experience a similar situation in Spring when the clocks change and the lighter evenings take over. We go with the flow, I ensure Dad is in bed as he has to lie down at night due to his heart condition and associated issues. I can cuddle up on the sofa and keep an eye on things with Mom keeping the door open so I can check on Dad.

Yesterday Dad’s right knee became more painful than usual and started to swell. We thought this was arthritis inflammation as a similar thing happened in June on the left knee; it took one day to flare up and almost nine weeks to resolve. Thankfully the stairlift is in now which it wasn’t in June when I had to flex my muscles to help him on the stairs. The doctor prescribed some strong anti-inflammatory gel yesterday and although the joint is still extremely painful and he still can’t put weight on the leg, the swelling has not increased so far. Again I am flexing my muscles to help him in and out of his chair. 

Yesterday morning I had a hospital appointment for an ultrasound, abdominal and internal. I was supposed to come home and rest but I couldn’t do that. I was on high anxiety the hour I was at my appointment even though our lovely carer was covering for me. When I returned to find Dad totally immobile I had to take over the jobs he usually does. I just left a lot of chores and concentrated on the needs of Mom and Dad, you just have to go with the flow. It was difficult as I was in a lot of pain myself, but you have to just keep going, there is just me. 

Trying to cope with both of them at the same time was so hard, negotiating Mom’s changing mood, helping Dad in and out of his chair, bathroom visits for both of them, cooking, medication, helping Dad to bed and then an all nighter with Mom.  

It made me think a lot about self care, about how important it is for me to stay healthy in order to look after them. It also made me think about contingency plans should I fall ill and also about making a will just in case. I need to be as sure as I can be that they will be looked after properly, with love and attention should I not be here. 

Being a full time carer gives you a lot of food for thought, worries and anxieties. It is also very rewarding and I’m loving this time spent with my parents as challenging as it is at times.


Picture via Pinterest 

I’m behind on reading your wonderful blog posts, I promise to catch up soon and as usual I have loads more I want to write about, I never know when to stop!

© @aurorasparkles 2017

Life Sparkles

Crisp, Cold and Beautiful.

I’m loving these few days of late Autumn, early Winter we’re having. Living in The Midlands of England we are quite sheltered from extremely bad weather. If we get it bad here it must be truly desperate in other areas of the country.  The forecasters are saying heavy rain on the way but for the past few days it has been beautiful. Cold, dry, sunny and perfect for getting a quick walk and some fresh air. I feel so much better for making the effort to go outdoors, feel the sunshine or the wind on my face. After today I think the hat and gloves need to come out!!

This afternoon I took a chance and had a shorter around the block walk. I was taking a chance as it was a little later than usual for me to venture out. It was just starting to get dark, twilight, sundown…which is also what throws Mom into confusion about the time of day or night “Sundowning” is quite apt. We had an all nighter last night and Mom was still not on good terms with me (it happens), hence I took the chance to walk.

It was stunning outside, the twilight sunset and the rising of the moon. The touch of the evening mist on my face and the cold on my hands. A sense of freedom, re-newed energy and a feeling of wellbeing. I was gone for 25 minutes and I felt amazing when I returned. Ready to face the evening and by now, Mom was friends with me again.

Moon Rising.

Twilight Sunset.
Such beautiful colours, nature at her best.
Saturday Afternoon Walking – Posing as usual.
I loved the look of these Trees.

 © @aurorasparkles 2017

Life Sparkles

Yesterday.

Yesterday, all my troubles were definitely not far away. We all know things can happen in a breath and when they do you appear to enter some form of altered reality.

Before I start to relay my tale, I’ll let you know up front that things appear, so far, to be ok. I’m writing this blog post for a couple of reasons; one to help me deal with things and two, to give a little insight into life as a carer.

My fairy of a Mom had a sudden collapse yesterday around 1 pm. Dad shouted for me and when I seen her I immediately dialled 999 for paramedics. All colour had drained from her, she couldn’t breathe, she was boiling hot, weak, dizzy, reteching, feeling sick and barely able to talk. Dad was in a state but remaining calm, I was in stress city but for some reason I’m always good in a crisis. I fall apart afterwards. Paramedics arrived within fifteen minutes and all vital signs were fine, which was a relief, but Mom was still very sick. The decision was made she would need to go to hospital. I ran around like a crazy thing grabbing what I thought we’d need. It was afternoon, I knew Dad would be ok for a couple of hours but he was crying as they carried Mom out to the ambulance. I was trying to calm him down, I knew how he felt, but I had to stay strong. 

Mom was very quiet, still very sick and weak. We were booked into A & E and transferred to a bed outside the already occupied bays. I stood by the trolley and cuddled her. She looked so small and frail. The Doctors and nurses were wonderful. We were in a bay fairly quickly, vitals were taken again and were all good. Blood samples were taken as it takes about ninety minutes for the results, so best to not delay. Mom was made a cup of tea, she was more talkative, the colour was returning to her cheeks, she was able to drink her tea and she wasn’t feeling sick. 

We then seen the Senior Doctor and a Junior Doctor; lots of examinations, questions, and assessment. Mom was much improved by this time. The Doctor said he would await the blood tests before making a decision on whether Mom could come home. If we were being kept in, it meant I had to ensure there was a carer at home overnight with Dad. 

We were wheeled out of the bay and Mom was given some tea and toast. Mom was asking lots of questions about what happened and what’s happening next and when could we go home to Dad. I could see myself she was back to normal by now, but it had taken three and a half hours. A senior sister came over to chat to Mom; she needed Mom to get up and walk so they could check her mobility…and that’s when the mood changed. Mom would not get off that bed until she was ready, she was no longer listening to me, she was doing things her way. After a few minutes she got off the bed and started to walk around the area, bearing in mind we were still in the area where the ambulances bring in the patients and it was busy, with all kinds of ailments, medical, mental, alcohol and here was my dot of a Mom strolling around through it all, me trying to hold Mom, bags and jackets and try to get her to sit down. I was scared she would fall and break a hip again. Apart from not wanting that to happen, nor wanting a two week stay in hospital there would be the panic of looking after Dad too!


Picture via Pinterest 

The Doctor arrived to say all bloods were fine, they were satisfied what had happened was a sudden drop in blood pressure. We could go home and I was to keep an eye on things. Hooray I thought, so relieved that all was ok and we could go. Mom however had other ideas. She wouldn’t leave the department, she did not think I was taking her home in a taxi.  Mom wanted Dad. I phoned Dad to talk to her, she wouldn’t speak with him. The taxi arrived, she wouldn’t walk out to it. I had to send the taxi home to get Dad and bring him to the hospital so that he could take her home. In the midst of this our Parish Priest arrived and Mom sat down to chat with him. He then waited for Dad to arrive and walked him in to where we were. So now I had two of them sitting in what was becoming an increasingly busy department as evening rolled in…and no sign of going home. I was stood in the middle of the department, with it all unraveling in front of me in a kind of fog, wondering what the hell I was supposed to do now. It was all down to me to sort this out, do something, but what?!!!

Inspiration arrived. I contacted the lovely male carer who visits each week to see if needed, could he stay overnight with Dad, yes he could. I was thinking I’d have to send Dad home and I’d stay with Mom until she was ready to move. There was still no sign of movement towards home when I returned to them so I called our wonderfully kind neighbour who Mom has girlie evenings with if I’m off to a show; she said she would come down to A & E and hopefully that would entice Mom to come home.

When I got back to them this time, Mom’s mood had changed back and she was ready to come home. So, the three of us took a very slow walk, me trying to hold them both steady, over towards the A & E waiting room. Half way there our neighbour approached, Mom was delighted to see her. We sat at a table and bought tea and I called another taxi. Another very slow walk out into the evening and into the car.  The taxi driver was lovely, he treated Mom like she was his own family, put her in the seat next to him and they chatted all the way home. Such kindness was so appreciated.  Tea and toast all round, our neighbour came in to chat to Mom and all was calm. Four hours after we were told we could come home, we were home!

I didn’t care last night that we didn’t get to bed. Mom was ok, safe, warm and asleep in her chair, I was happy to be on the sofa watching over her. I had settled Dad to bed, he was worn out after the day.  

Today has been a slow, tired out, just hitting me kind of day. Mom did amazingly well considering her ordeal and I think it was actually better that she was in her strong, independent mood as she coped with things better than if she felt afraid or vulnerable. She slept a lot today but she must have been shattered.

It was one thing me going to hospital with Mom and being able to leave Dad alone for a few hours but should it be the other way around, I couldn’t leave Mom unattended and I’d have to be very careful who was here. The emergency back up service will supply me with a nurse but it will be someone we have never met and there is no way around that.  This will not be good but I may not have a choice. 

Tonight, we have made it to bed, Dad has had some angina so I’m on wide awake alert. Today I stood in the kitchen thinking “this is to much for me”, “I can’t cope/deal/take on all this responsibility” and all the time the quote about God not giving us more than we can handle kept coming to mind. Self-care has come to mind too; I’m tired, I’ve forced myself to eat because I know I need to have strength for tomorrow, if I keel over, we have real problems here.

I need to build more contingency plans, I’m not sure how or who with but I need to have things in place. I don’t know how quickly the emergency carers can be here. I don’t know if our companion carers can successfully cover emergencies. I don’t know if there is anything else I can put in place to assist us…I need to find out. My chap couldn’t come to help me yesterday as he is currently alone caring for his Mother whilst his sister is on holiday.

Ever thankful to our fantastic NHS, we are so lucky to have the healthcare system that we do in the UK. 

Here’s to a less tired, calmer, less stressful weekend.


Picture via Pinterest 

Life Sparkles

Love your bed!!

Why am I saying this? Because I haven’t managed to stay in bed all night for four nights out of six and at the moment, I’m not sure about tonight.

Mom is having a very unsettled week when it comes to bedtime. On average we experience one night in twentyone where I am up all night with Mom. It’s all part of the “Sundowning” which Mom goes through. Sundowning is a condition where the body clock goes out of kilter; for want of a better explanation. It is especially prominent in the Winter when it gets dark around 3 pm and doesn’t brighten up again until after 8:30 am. The start and end to British Summer Time, when the clocks go backwards and forwards are particularly challenging weeks where Mom can suffer with Sundown perhaps eight out of twelve days. It is particularly tiring for me as I am up with her; chatting, making tea, trying to remove the confusion or alleviate whatever it is that is causing her fear.  It was particularly hard to deal with when I had the day job; being up most of the night and then having to log in to work was stressful and at least now, if we’re up all night, it doesn’t affect anything other than my mood, energy levels and plans for the day which can always be changed.


Via Pinterest.

I no longer, and haven’t for a long time, taken for granted the simple act of getting into bed, going to sleep and staying in bed until morning.  Something I gave no thought to before, I just did it, has almost become the goal of the day. 

I don’t know why Mom is unsettled this week; we’ve had one all nighter, one get up and return to bed four times night (that’s unusual), one get up and stay up five minutes after going to bed in the first place and one “I’m not going to bed” night. Add to a couple of these confusion about not being in her own bed or home and it can be so hard to deal with…especially when you’re tired.

Tonight I inflated the blow up mattress my b/f uses when he comes to stay, (I’ve no idea how he manages to pack it away so small and tidy afterwards, that’s a task for the morning) however, no sooner had I got settled on the mattress as I just couldn’t face another night on the sofa and neither could my back, Mom decides to go to bed! Hallelujah!

Dad bless him does his best, he offers to stay up all night but I have to be strong, he has to lie in bed all night and get sleep, no argument.  The lack of sleep tiredness is so awful; makes me impatient, grumpy and absolutely no energy. I thought I was going to cry tonight when there was no sign of bed and my beautiful fairy of a Mom just wouldn’t have understood why.

Whether we stay up here or end up back downstairs is still open at the moment. Between us, I’m praying for a night of sleep in my bed.  I hope you are all sleeping well, love your bed!!


Via Pinterest 

Life Sparkles

In the words of Spandau Ballet…

…”these are my salad days”, (that is what they sing in “Gold” isn’t it or have I been wrong all these years?). Anyway, I digress, as usual!

Last week we had a heatwave in the UK. Apparently five consecutive days where we reach 30 degrees celsius, eighty-six farenheit, is officially a heatwave. I loved it! Blue skies, sunshine, warmth and a rare chance to wear Summer clothes. Let’s face it, we don’t get brilliant Summers so any chance to enjoy the good weather and we’re out there.

This beautiful weather kick started me back to healthy eating. After my gall bladder removal operation I ate very little, eventually progressing to fresh soup, fruit and bran flakes. I lost a stone in weight and felt great, my clothes were not straining to fit anymore. Of course as I healed I fell back to bad habits, biscuits, chocolate and yes even cake. I admit I enjoyed it better when I was eating healthy and not having to worry about what I was eating, because it was all healthy. I just need to keep the momentum up now that the weather is back to rain between the showers and colder than average for the time of year. Here comes Summer 🏖☀️😎

You know it’s Summer when the Strawberries are sweet.

I think I’m addicted to falafel 🥙 

Making good use of my Ninja again!

Yes, falafel again.

I’m also addicted to avocado 🥑 but limit my fix…not the cheapest – wait for the bargains.

Life Sparkles

Positives and Opportunities.

look-for-the-positive

“Our Gallbladder is a 4 inch pear-shaped organ positioned under your liver in the upper right section of the abdomen. The Gallbladder stores bile, a combination of fluids, fat and cholesterol.  The bile helps break down fat from the food in our intestine”. (www.healthline.com).

It appears that I have chronic (long-term) inflammation of the gallbladder. This has recently come to a head in the last two months after I experienced two bouts of pain like never before.  I couldn’t sit, stand, lie down – I just had to keep walking and no relief from the pain for hours.  After ultrasounds, blood tests and Dr’s appointments it was decided that to save further attacks and to prevent further damage to surrounding organs, I am to have the gallbladder removed.  Oh joy!

As a carer, this news put me into stress city.  I would be out of action for some weeks post operation. The consultant said I would have to stay in hospital overnight – further stress, how can I leave my parents alone overnight?!!!  I can’t just bring strangers in to the home?

And therein is the dilemma of millions of carers the world over. Who cares for the carer? There is no way I can put off the operation, apart from the constant pain and other symptoms which I have daily, (pain in the left side which radiates through the to back to up to the shoulder, heartburn, hot flushes and sometimes a chronic attack of pain and swollen tummy). things could take a nasty turn if left unattended. Which would untimely means further pressure on my caring responsibilities.

Therefore I have just had to plan around this.  I have worked like a demon for the last three or so weeks, getting the house clean, shopping in advance, getting up to date and prepared for a handover in the day job.  I can use my post operation time off to study, I have another assignment due on 16th March.  I won’t be able to sing for a little while until my muscles regain their strength but I can check out backing tracks and lyrics.   The way I see it is that I have been given a period of enforced rest, thinking time, sorting out time, regain health and fitness time – really, a time to start again, a new page, a new phase of life.

I am thankful to God that he sent me a wonderful boyfriend who has rearranged his caring responsibilities in order to come over to stay with my parents the night I am in hospital. This removes the bulk of my stress and  I will not be trying to walk home with my drip attached during the evening or overnight  to ensure they are ok.  Anxiety can make you irrational!

I will be away from the day job for at least two, possibly three weeks depending on my healing and I intend to use this time wisely. There are so many things I want to investigate for my studies, health and social care, carers, mental health first aid.  Then there is my passion for singing and researching music, recordings and video’s.  I’ve ordered the box set of “Nashville” as I will be off to see the show in June.  This will also be a great opportunity to get my healthy eating, diet and fitness back into harness.  A chance to start over.  I can also blog a little more, I really enjoy blogging, very therapeutic and I love to read other blogs.  People lead such interesting lives, have wonderful talents and some have difficult lives and their words give you an understanding of other aspects of our world.

My thought to leave you with today is to check out any symptoms, pains and aches you may be experiencing, your body has a way of letting you know something isn’t right, don’t leave them unattended. Look for the positives in your situation, grab your opportunities and make the most of each moment.

look-for-the-positive-vibes

Images from Pinterest.

 

Life Sparkles

Winter Frost.

I’ve not been out for a walk for ages, I think probably the end of November was the last time I actually went out for a walk, just for having a walk. It has been a beautiful day here in Central England. Freezing cold, frost remained on the ground all day. Clear blue skies and sunshine, just perfection.

I have been studying today, but I needed some fresh air, I felt kind of slouchy, lazy, sluggish. It was late afternoon, the sun was starting to go down, that low frost mist was appearing and I grabbed my coat, hat, scarf and gloves…and the iPod and off out I went.

It was gorgeous out there, the cold air hit my face and it was refreshing. Within five minutes I felt a million times better. Ideas and positive thoughts started to flood my brain. There were people out running, cycling, families out for a walk and lone walkers like me although perhaps they weren’t singing out loud complete with actions…

My legs ache now. It wasn’t a long walk, I was out about 45 minutes but it shows me just how out of condition I am. I can’t believe I ran 5k in June in 40 minutes, I really want to get that level of fitness back and beat it!

Here are a couple of pictures I took on my walk this afternoon.

Sometimes you just need to escape for a little you time.